When individuals are conviced of a crime and given a life sentence, it is a major punishment. When a state allows the death penalty and a person is facing a death sentence, it may seem even worse. It really depends on how the individual thinks about life and their future.
There are thousands of death sentences given every day. These are not given by a judge in a courtrom, but they are given by doctors and ultimately God. These could be when an individual finds out their cancer is incurable, or when parents discover that their child has a genetic syndrome that will ultimately lead to death. For some, the knowledge that they will soon die, may be a comfort. Years of struggle will finally be ending, and heaven will soon be more than something you know by faith.
There are also many life sentences given every day. Children like my son were given a life sentence. CHARGE syndrome does not necessarily lead to death. Most of the time it does not. It does offer a life of disability and some suffering. There are many people living with life sentences. Those who have children who are living with them, might often feel the pain of their child. Living with a life sentence of disability is stressful, discouraging, and can often lead to despair. If you are in this place, your thinking in the right way, could help you through it. Thinking about the truth of your situation can bring you comfort, because you know that God works all things for the good of those who know Him as Savior. You also know that this life is temporary. The hard things will someday pass away with all tears.
It is not for me to say whether it is better for a child born with a debilitating disease to not have to live with it. It is not for me to say what is better. That is in God's hands, and what He does is best. I do not believe that aborting a child is right no matter what is wrong with a child. Those of us with children with disabilities or who have disabilities of our own may wonder why God allowed this problem in the first place. Why did I get the life sentence rather than the death sentence? Was God showing mercy to some and giving grace to others? We will probably never know why God has chosen as He has. It should be good enough to know that it is for our good. When individuals choose abortion and take their child's life into their own hands, they will never really know what would have happened. Their child may have been given a sentence to life with a difficult condition. It might have been hard, but in God's plan He offers the grace to make it through.
If you are in one of these positions. And you feel like neither life or death looks good, then look up. A passage I memorized several years ago says it so well. I Peter 1:3-9 says, "Blessed be the God and Father of our Lord Jesus Christ, which according to his abundant mercy hath begotten us again unto a lively hope by the resurrection of Jesus Christ from the dead, to an inheritance incorruptible, and undefiled, and that fadeth not away, reserved in heaven for you, who are kept by the power of God through faith unto salvation ready to be revealed in the last time." These words tell me that whether we live in suffering on earth or die, the end will be the same for those of us who have accepted Christ. Don't give up, look up! Let God fulfill His plan, and try not to question it. This life is not forever, glorify Him as much as you can with the life He has given you.